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Oznaka: red skin syndrome

Domov / red skin syndrome
Red Skin Syndrome

Winter is coming! Beware, skin. #59 months TSW

avtor Maja Šterposodobljeno16 decembra, 201915 decembra, 2019Pusti komentar na Winter is coming! Beware, skin. #59 months TSW

I am sharing my thoughts and perspective about my current skin condition, life, changes, hope, learning and growing.

Red Skin Syndrome Sindrom rdeče kože

Interview #7: Maja Ster

avtor Maja Šterposodobljeno16 decembra, 201916 januarja, 2017Pusti komentar na Interview #7: Maja Ster

Moj intervju je bil objavljen kot eden od serije intervjujev na strani Preventable: Protecting our largest organ. Namen te strani je preprečevanje sindroma rdeče kože in uvedba reform pri uporabi topičnih steroidov.

_maja.ster_

✨ Lover of words and world(s) inside
✨ Clairvision student
🔥 Sharing about Topical Steroid Withdrawal, skin issues, and spiritual development.🔥
🩵 🩵
Follow your Truth. It will take you places.🩵 Follow your Truth. It will take you places.🩵
Zdaj sem, enkrat me več ne bo. Negujem svoje cvet Zdaj sem, enkrat me več ne bo. Negujem svoje cvetlice. V samem višku cvetenja so. Letos me navdajajo z mehkobno nežnostjo in radostjo - sploh ti mali rumeni cvetovi - kot polje malih žarečih sonc so!!! Pomislim: "Hmm, pa kako naj jih ohranim take?!" Nato me spreleti: "... me morem! Z začetkom zime bodo uvenele in izgubile cvetove." To je dejstvo. Enostavno dejstvo življenja. Če mi je všeč ali ne. Lahko jih le polno doživim, sedajle. V tem trenutku. Jih občudujem in uživam v njihovi bohotnosti. Sem prisotna s svojo radostjo, ki se poraja v meni, ko jih opazujem. Z nežnim čudenjem, ki vznikne, ko opazujem popolno simetrijo cvetov. Kmalu jih ne bo več. Pa ni tako tudi z nami? Z našimi bližnjimi? Ce pogledam iz širše perspektive na svoje življenje, je enako življenju cvetlice. Le dolžina je daljša. Nesporno dejstvo. Zdaj sem - enkrat me več ne bo. In mojih bližnjih. Priznam, nekje znotraj me zaščemi ob tej perspektivi. Istočasno pa ... me navda z radostjo. Tako kot cvetlico, tudi svoje bližnje lahko le "polno doživim", sedajle. V tem trenutku. Ker dejstvo življenja je, da jih enkrat več ne bo. Rože, ki so sedajle v svojem višku, imajo pred sabo pot navzdol. Tudi naši bližnji, ki so v svojem višku, imajo pred sabo pot navzdol. Če to ni opomnik, da čutim in opazim svojo mamo, očeta, brata, partnerja, sestro, prijateljico kot da jih vidim zadnjič - potem ne vem, kaj je.❤️ Kaj se zbuja ob meni ob tej osebi. Kaj čutim, ko objamem nečaka/injo? Na kakšen način se premakne nekaj v mojem srcu, ko me partner podraži na čisti njegov način? Kaj je živo v meni, ko si ti prisoten z mano in jaz s teboj?😌 Neprecenljivi trenutki. Neprecenljivo življenje. Samo eno. Vsaj tole, ki ga živimo sedaj. Pa lahko - sedajle - v polnosti živim tudi sebe? Čutim svoje telo? Svoje roke, ki se premikajo. Stopala. Prste na nogah, ki se dotikajo površine tal. Trebuh. Srce in trup. Dviganje in padanje prsnega koša, ko diham. Obraz. Usta. Oči? Kaj je smisel vsega skupaj, če tega, kar imam, ne cenim - sedaj. Ker vsega tega enkrat več ne bo.
I don't care what you think about this post. #sel I don't care what you think about this post. #selflove #NOtobullshit #yestoboundaries Tok imaš za dati. Upam, da se zavedaš svoje vrednosti. Preizkušnje ustvarjajo globine. Ki postanejo srčika tvoje moči. Misli, ki se prepletajo. Misli, ki kipijo v globinah. Resnica globoko znotraj. Be you. Uncompromisingly you.
It is a delicate, yet powerful thing. To love your It is a delicate, yet powerful thing. To love yourself to your core. 🌸🩷 . It is not egocentric. It is the most practical, functional think that there is. It makes you grounded, content, nurtured. And it enables you to hold people in a way that is never possible if you - don't - love - yourself - fully. . What does it mean? . Still a bit of a mistery to me. It is connected with opening to all that there is inside (hatered, trauma, love, grief, sadness, lust, entusiasm, excitement, joy, all of it). And with accepting yourself. And with letting go of beliefs that are not beneficial for you (or for anyone). . It is constant work. And it changes e v e r y t h i n g. #whatalife #love #selflove #healing #loveishealing
BE KIND. You never know what is happening for the BE KIND. You never know what is happening for the person beneath the cream foundation. Beneath the smile. Underneath the clothes. Inside. . Be kind. 💎 Share and like. Spread the love.❤️ #eczema #care #skinconditions #skinhealth #whatalife
Največ kar včasih lahko damo sočloveku je, da ga v Največ kar včasih lahko damo sočloveku je, da ga vidimo - z vso njegovo bolečino in z vsem magicom, ki ga prinaša na ta svet. 💎 #topicalsteroidwithdrawal #topicalsteroidaddiction #eczema #care #love #whatalife
It's the little things. It's the simple things - t It's the little things. It's the simple things - that make this life worth living. That make it easier. And that can heal. . In my Topical Steroid Withdrawal journey I realised that nothing is more important than people who care. Eyes 👀 that look at you. Ears👂that listen to you. Heart ❤️ that is there for you. . This is it. Person who cares, tries to understand you. Tries to feel you. Cries with you. And walks this path of pain and suffering with you. . That is why this is a healing. Someone is sharing your pain. Even if they don't feel it physically. They take the pain and walk this path with you. That is what caregivers do. And it is worth all the freaking respect in this world. All the love to my partner Miha, my whole family, my closest friends. I will never forget your presence and care in this last 10 years. 😭❤️‍🩹🐛🦋 #topicalsteroidwithdrawal #topicalsteroidaddiction #skinhealth #skinconditions #eczema #care #love
V parih dneh bom 🎉🎉 10 let v odvajanju od kortikos V parih dneh bom 🎉🎉 10 let v odvajanju od kortikosteroidov. Nimam pojma, kako sem preživela, če sem iskrena. Vem pa, da nisem več ista oseba kot ob začetku. . 💡 V tokratnem videu želim ozaveščati o kortikosteroidnih kremah (npr. Advantan, Elocom, Locoidon) in opozoriti vse, ki imate kožna obolenja, da se pred njihovo uporabo dobro informirate. . Tukaj nekaj virov informacij: www.itsan.org www.svetvtebi.si https://youtu.be/RMbtf3C8BZk?si=agiNHpMqgCkOeou6 Vsem rdečkom pa: če se ne zavedate, kako zelo močni, lepi in pogumni ste; vam to povem jaz. ❤️ #odvajanjeodkortikosteroidov #sindromrdecekoze #koza #ekcemi #atopijskidermatitis #srbenje #topicalsteroidwithdrawal #pogum #vztrajnost #whatalife
Celebrating 🎉 🎉10 years of Topical Steroid Withdra Celebrating 🎉 🎉10 years of Topical Steroid Withdrawal in a few days! . I decided to share a bit of me. This time for real. No masks. This is me now. Winter is not a nice time in a life of people with skin conditions.❄️❄️ . Stay tuned! Some more content coming. Then maybe I will be able to close this chapter. Let's see! 💡 If you do not know what TSW is, here is a documentary of my amazing common TSW warrior Briana @preventable_doc: https://youtu.be/RMbtf3C8BZk?si=BeLbbLFCXeC3SQ8q. 💪 #topicalsteroidwithdrawal #topicalsteroidaddiction #topicalsteroids #eczema #skincondition #skin #love #whatalife
How much more full our lives could be? How much mo How much more full our lives could be? How much more free we could feel? 🕊️ . There is immense opportunity for all of us to have more space, time and freedom. Simply by choosing things, moments and people in our life with precise clarity. Being present with our choices. . Not doing things - just because. Doing things because they truly make sense. Because they make us feel good and aligned. And just NOT doing all the rest. . That would mean decluttering. That would mean creating the life that we want for ourselves. That would mean being the driver in our own vehicle. That would mean owning our decisions. Owning ourselves. . Do we dare? ❤️‍🔥 #whatalife #choices #allispossible #wecreateourlives #declutter #declutteryourlife #declutteryourhome #declutteryourmind
Maybe nobody ever told you that ... but you are ca Maybe nobody ever told you that ... but you are capable of doing exactly what you want. 💎 . Are you ready to own it? To own you? To do stuff that you are here for? . Not sure? Maybe not ... right now? 😜 Haha, we are in the same boat. And most definetly we got this. 💪 #whatalife
Writing is a sacred thing for me. So important. Writing is a sacred thing for me. So important. So important that sometimes I rather don't do it. For months and months. Why? So that I would not do it "wrong". So that I would not "fail". I rather stay quiet than share my voice. My thoughts. Because people might find what I have to say boring. Hahahaha! How silly is that!? Who cares, really? The amount of content on the internet nowadays ... anything I say or write will anyways get lost somewhere in the overload of news. But!!! If I still do it. Write. Share. Because it is freaking important for me ... I do something for ME. Something important. Something truly special. Something that lits ME up inside. Something that makes ME more alive. More here. More present. And maybe, along the way, I inspire someone to do the thing he/she wants to freaking do, but doesn't. Because of "what will they say". I believe you can. Just like today someone believed I can. And inspired me to. Start. Writing. And. Sharing. Again. Because it is important for me. You might, or might not hahaha, hear from me more.😜 #writing #inspiration #whatalife
Writing is a sacred thing for me. So important. Writing is a sacred thing for me. So important. So important that sometimes I rather don't do it. For months and months. Why? So that I would not do it "wrong". So that I would not "fail". I rather stay quiet than share my voice. My thoughts. Because people might find what I have to say boring. Hahahaha! How silly is that!? Who cares, really? The amount of content on the internet nowadays ... anything I say or write will anyways get lost somewhere in the overload of news. But!!! If I still do it. Write. Share. Because it is freaking important for me ... I do something for ME. Something important. Something truly special. Something that lits ME up inside. Something that makes ME more alive. More here. More present. And maybe, along the way, I inspire someone to do the thing he/she wants to freaking do, but doesn't. Because of "what will they say". I believe you can. Just like today someone believed I can. And inspired me to. Start. Writing. And. Sharing. Again. Because it is important for me. You might, or might not hahaha, hear from me more.😜 #writing #inspiration
My forest. 🌳 My forest. 🌳
Why not living under your own terms? Finding your Why not living under your own terms? Finding your own flow. Being a little bit weird sometimes. A little bit different, perhaps. . Well ... painting your world in your own colors without feeling bad - is all I'm saying. 😜🤘🤍💫 #flow #doyou
Hi all!!🙌A bit of sharing for you ... . In the mos Hi all!!🙌A bit of sharing for you ... . In the most wild and exceptional dreams I could not imagine what is possible to achieve with persistancy and hard work. Staying at the property of the Clairvision school in north California for two months was a blast. A freaking hard journey. An amazing roller coaster. . Not a story to really be shared. . It feels like a massive breakthrough. It feels like.. just the beginning.💫 . You will hear. From me. But not so much the details of the journey. . But fruits of the transformation. Bits and juices of what is to be said. I feel a voice inside. It calls for the Truth. It wants to invite others on an amazing journey. That leads closer to themselves. . So much to unravel. So much to open to. So much to experience. So much to explore. So much to BE. . . I must ask ... does this speak to some magical hidden silent part of you - if you let yourself hear? If you let yourself feel? ❤️‍🔥☄️💥 . Let me know!🤘😎 (Some of my future posts will be in English.) #selftransformation #truth #clairvision #inner #epik #journey #transformation
No words. To describe. How grateful I am. Not just No words. To describe. How grateful I am. Not just for this amazing moment at the "edge" of the ocean. But for this whole epik journey. . . Transformation. People I had met. Places I had been - inside and outside. Shattering of things that do not matter. Building of structure that makes so much sense. . . Who I even am now? Let's find out!!😜❤️❤️‍🔥 @clairvision_slovenija @clairvision @california
Omojbog, počutim se tako navdihnjeno! Že skoraj en Omojbog, počutim se tako navdihnjeno! Že skoraj en mesec sem na posestvu šole Clairvision v Severni Kaliforniji, kjer vsakodnevno in celodnevno prakticiram prakse meditacije ter mnoge druge prakse in se skozi cele dneve povezujem z energijo. To je prostor, kjer maske padejo in kjer vse, kar ni resnično, ne more obstati. Fascinira me, ker prinaša toliko Resnice. Vse te prakse in ostalo, kar delamo, je izredno zahtevno, praktično brez predaha, in zahteva ogromno vloženega truda, energije in predanosti. . Delo na sebi je delo. Nihče ni rekel, da bo lahko. Sploh, ko se tako intenzivno luščijo predstave tega, kdo naj bi bila, ki pravzaprav niso resnične. Spuščanje iluzij ni lahko. Stopanje v stik z resničnimi deli sebe ni lahko. . Je pa neverjetno izpolnjujoče! Prinaša smisel. Prinaša ogenj. Prinaša resnico. Meni osebno pomeni sledenje sebi, odpiranje same sebe lastnim potencialom, stopanje v dele v sebi, ki žarijo, ki izražajo srčnost, iskrivost, kvalitete višjega jaza. . Neverjetno hvaležna sem, da sem lahko tu. Da lahko raziskujem, se učim in duhovno, osebnostno rastem. Transformiram sebe. Da bom enkrat kasneje lahko pomagala drugim transformirati njih. Držati prostor za spremembe - da na plano pokukajo skriti deli, tisti najbolj pristni, ki si jih marsikdo ne upa pogledati. Se z njimi soočiti, jih zaobjeti. . A jih vsak ima. Toliko potenciala! Čisto vse je mogoče. . Lahko si kdorkoli. Lahko dosežeš karkoli. . Po vseh preizkušnjah zadnjih let lahko rečem, da sem na točki, kjer se zgodi preobrat. Kjer se stvari resnično začnejo preobražati. Kar prižiga moje srce na način, ki ga ne zmorem niti opisati. Hvalezna za mojo pot do tu.
Ustvarimo družbo, kulturo, kjer je sledenje svoji Ustvarimo družbo, kulturo, kjer je sledenje svoji resnici vrednota. Kjer je ok reči ne nečemu, glede česar v sebi čutiš NE. . A NE je nekaj, česar pogosto ni lahko reči.😵‍💫 Vsaj ne, če si odraščal v okolju, kjer je treba slediti določenim vzorcem, da si sprejet od zunaj. . Sprejemanje s strani zunanjega okolja🫡 sprejemanje sebe “od znotraj”😘. Včasih v korelaciji teh dveh dimenzij pride do konflikta. . A zato je notranja jasnost in odločenost še toliko bolj pomembna. Upoštevam zunanja “določila”, a le do tam, kjer je še sprejemljivo in ok za moje notranje meje. 🫶 . Do tam, do kjer lahko še z iskrenostjo rečem, da še spoštujem sebe in svoj notranji svet. Do tam (če sploh seveda), do kjer se čuti prav. Na eni točki pa je čas za NE. . “Ne, ne bom sledila temu običaju, temu določilu, tej zahtevi okolja, preveč je v neskladju s tem, kar čutim.” ~ Iskanje ravno pravega “sweet spota”, sladkobne točke, kjer se s svojimi odločitvami počutiš okej. Da lahko kakovostno ohranjaš stik z “zunanjim svetom” in tudi s sabo. ~ To se čuti najboljše, ane? Kaj pa ti mislis o tej temi? Seveda pa - vsak si meje odmerja sam. Vsak zase najbolj ve, kaj je ZANJ prav. #meje #feelinggood #gutlajf
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